Today’s Topic: Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see? (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)
Dear Dr. Amess,
I just met you last week, and you’re the fourth Endocrinologist that I have been to. My first Endo, basically started me out with insulin, but basically did what I told him. When I wanted to go on MDI from Regular/N, he said “okay”. When I wanted to get a pump, he said “okay”. He was so used to older Type2 patients that he really didn’t know how to deal with me. My second one dismissed me with “You need to exercise, then you won’t be so insulin resistant”. One visit with her, and I was D-U-N DONE! My third Endo only knew about putting T2’s on insulin and I had to defer to my pump rep and my CDE.
So far, you have had the slam, bam technology thing figured out. You took readings from my pump not from my meter. You knew about “Others”. You asked me what I wanted, explained what you thought should happen, and we both agreed on common goals. So far, you’re an A+! I was so happy to hear from you that you wanted to look me up on the Internet after our discussion to see what I had to say. You think my diabetes is interesting, you want to know more how to help me as there isn’t much information on “others”. I LOVE THIS!
I hope that you don’t look into how often I buy pump supplies. I wasn’t truthful how long I let sets last. I push them as far as I can to save money. I’m a reservoir cheater. When next February comes around and I don’t have to pay for them again, I’ll be a good girl, I PROMISE.
So I hope you and I can keep this up. I need someone like you in my life!
Your new D-patient,
After reading all of the debacle regarding the online petition that advocates for changing the names of type 1 and type 2 diabetes, I had to put in my input. See, I’m not a T1, or a T2, nor did I get diabetes because I was pregnant. I am the forgotten. The unknown. The WTF are you talking about? SAY WHAT?!? I am an “Other”.
As Wikipedia states it:
There are several rare causes of diabetes mellitus that do not fit into type 1, type 2, or gestational diabetes; attempts to classify them remain controversial. Some cases of diabetes are caused by the body’s tissue receptors not responding to insulin (even when insulin levels are normal, which is what separates it from type 2 diabetes); this form is very uncommon. Genetic mutations (autosomal or mitochondrial) can lead to defects in beta cell function. Abnormal insulin action may also have been genetically determined in some cases. Any disease that causes extensive damage to the pancreas may lead to diabetes (for example, chronic pancreatitis and cystic fibrosis). Diseases associated with excessive secretion of insulin-antagonistic hormones can cause diabetes (which is typically resolved once the hormone excess is removed). Many drugs impair insulin secretion and some toxins damage pancreatic beta cells. The ICD-10 (1992) diagnostic entity, malnutrition-related diabetes mellitus (MRDM or MMDM, ICD-10 code E12), was deprecated by the World Health Organization when the current taxonomy was introduced in 1999.
What I find interesting about all of this talk is that no matter whether the names of Type 1 and Type 2 change or stay the same. I will still be an “Other”. The few of us that have this type of diabetes are very few and far between. I have yet to meet another “Other” personally. I have “met” a couple of them through the DOC (chat rooms/message boards) but not in real life. If you were lucky enough to meet me at a DOC meetup, you probably met the only “Other” you’ll ever meet. Funny how this type of diabetes always has quotation marks associated with it. Like a Roger Maris asterisk.
Although we are a type of diabetes recognized by the World Health Organization and most endocrinologists know of it. How educated is the public? Should I start my own petition so that I am recognized and people know exactly how I got my diabetes? I guess I would call it the DCPPTGAPID Diabetes (For “Damn C-Peptide Producing Pancreas That Gets Acute Pancreatitis and is Insulin Dependent” Diabetes.)
Recently Dr. James Bronner from UCSD Medical Center stated, “There’s no proof in diabetes that social networking is helpful.” WHAT A CROCK!
Without having the connections that the DOC (Diabetes Online Community) has brought to my life, I would not have an insulin pump, I would not have met the people that taught me so much about diabetes, I would not have… I could go on and on and on!
The bond is diabetes. But it is so much more than that. It is a family. A wild and wacky family at times, but still a family. I am grateful for each and every DOC person.
So I say this to Dr. Bronner: YOU HAVE NO IDEA!
I was given this assignment by Ginger Vieira of living in progress.com. Normally I’m not a very introspective person, but here goes!
1. My hair is wavy/curly and VERY soft!
2. I graduated at 16 years old from high school.
3. I’m a good friend.
4. I’ve been married for 23 years.
5. I’m an excellent Trivial Pursuit player.
6. I am a member of Mensa.
7. I’m a good mother with an excellent friendship with my daughter. They call us “the Gilmore Girls”.
8. I’m a good driver. I’ve never hit anyone or anything with a vehicle.
9. I can type 110 words per minute.
10. I can bake, I mean… REALLY BAKE! especially artisan breads.
I’d love to see the D-OC do this too, take a moment and think of 10 things you like about yourself.
Welcome to Week #1 of the Biggest Loser ‘D’ Style! Now is the time to put the fork down, and get the feet a movin’! Remember it is up to you to do this, we’ll be here for the support whenever you need it!
I set up a new domain with a blog set aside just for the BL-ds! so we’ll all be here: http://www.landileigh.com
Week #1 Challenge: Send via email “What is the worst food in your pantry? Why is it the worst food?”
Remember to check in weekly (Sunday evening) with the challenge and your weight on Sunday.
For every week of the 12-16 week challenge (we’ll follow the show schedule) that you check in with that week’s challenge and submit your weight, your name will go into a hat for fabulous prizes! Rickina from Stick Me Designs, and Amy Tenderich from Diabetes Mine are donating prizes to encourage all of us to be accountable.
Don’t forget support group chat Sundays at 5:00pm pacific – 8:00pm eastern HERE: http://diabetestalkfest.com/chat.html
Keep an eye on our new page, because it is changing rapidly! http://www.landileigh.com
So I talked about starting a “Biggest Loser” D-Style challenge for myself in my last post. In response, I had two of my d-friends ask if they could join in also. I thought to myself, what a great idea! Let’s open this up to the Diabetes Online Community and see who else might want to join in!
Now let me start this out, this IS NOT a diet. We’re all adults here, we’ve probably been on tons of diets. This is not an exercise plan. I’m not a doctor or a trainer. This is a support group. Here to encourage and push and guide. We all know what we need to do. We’ve been on Weight Watchers, Jenny Craig, SlimFast, a thousand diets. But what we lack is motivation and support. THAT IS WHAT THIS IS!
The Biggest Loser – “D” Style is a way to see your progress in black and white. To hold yourself accountable by having it published. No yelling, no “oh you’ve been bad”, just encouragement! No prizes, i think losing weight and getting healthy is prize in itself. We each plan on doing our own diets and starting our own exercise plans. I’m going to be replacing meals with Glucerna (easily digestible for my gastro) and using my Wii Fit and walking.
So if this sounds like something you’d like to be a part of (we will have cool Biggest Loser graphics for your blog!), then just send me an email with your height/weight/age and a front facing face shot of you to landileigh2 at gmail dot com, and we’ll add you in! Hope we have lots more participants!