landileigh's little world

i am OTHER WOMAN!

landileigh — Mon, 14 Apr 2008 16:02:58 +0000

So i’m talking to miss kerri this morning about Raise Your Voice, and although i do not have Type 1 diabetes, my voice is raised also. i have Other Diabetes.

Types of Diabetes:

Classification of Diabetes:

Type 1 Diabetes Mellitus
Type 2 Diabetes Mellitus
Gestational Diabetes
Other Types

As Wikipedia states it:

Other types

There are several rare causes of diabetes mellitus that do not fit into type 1, type 2, or gestational diabetes; attempts to classify them remain controversial. Some cases of diabetes are caused by the body’s tissue receptors not responding to insulin (even when insulin levels are normal, which is what separates it from type 2 diabetes); this form is very uncommon. Genetic mutations (autosomal ormitochondrial) can lead to defects in beta cell function. Abnormal insulin action may also have been genetically determined in some cases. Any disease that causes extensive damage to the pancreas may lead to diabetes (for example, chronic pancreatitis and cystic fibrosis). Diseases associated with excessive secretion of insulin-antagonistic hormones can cause diabetes (which is typically resolved once the hormone excess is removed). Many drugs impair insulin secretion and some toxins damage pancreatic beta cells. The ICD-10 (1992) diagnostic entity, malnutrition-related diabetes mellitus (MRDM or MMDM, ICD-10 code E12), was deprecated by the World Health Organization when the current taxonomy was introduced in 1999.^[3]

DAT’s ME!

I’m not T1, T2, Gestational…. I AM OTHER WOMAN! my treatment is the same as Type 1. My body acts like a T1. I am currently on MDI with looking towards the future of a pump. I’m very hypo aware. I also am currently in Stage 3 Chronic Kidney Disease (not a complication of Diabetes) that I had before diabetes.

A cure will not help ME, but it will help T1’s and T2’s.

my hope? my wish? someday… i dream of that kidney… that new one and with it… a new pancreas. it’s what would make me whole… someday. for all the people who have had Acute or Chronic Pancreatitis, or Pancreatic Cancer, or Cystic Fibrosis, or one of the many other reasons to be an OTHER, i have that wish.

So I RAISE MY VOICE! I raise my voice so you can hear and learn about me too. because although you don’t hear much about us OTHERS… we have diabetes too!

not the end of the world as we know it.

landileigh — Fri, 28 Mar 2008 04:49:32 +0000

message to my doctor - and his answer

—– Message —–

From: NELSON,LANDILEIGH L

Sent: 3/27/2008 9:48 AM

To: Office of DANIEL CURTISS OLIVER MD

Subject: Followup regarding Progesterone

Dear Dr. Oliver,

after 10 days of taking the Progesterone, i failed to have any menses. you wanted me to let you know if this happened. we have already ruled out Polycystic Ovary Syndrome. Currently I have no menopausal symptoms, but that could be perfectly normal i guess. no period since june 2007. guess i shouldn’t complain!

landileigh nelson

To:

Landileigh L Nelson

From:

DANIEL CURTISS OLIVER MD

Received:

3/27/08 10:56 AM

Dear Landileigh,

Your FSH of 27 would suggest that you are Postmenopausal and that is likely th reason you had no bleeding after the progesterone challenge. If the FSH is less than 15 that is normal Pre Menopausal; if it is over 25 that is clearly Post Menopausal; while 15-25 is transitional.

Let me know if there is anything else I can do,

Dr. Oliver

guess nothing anyone can do… *sigh*

i think the part that really got me about this… i was 44 when everything just “stopped”. no symptoms, nothing. i got diabetes and went through menopause in the same month. boom. this is your life from now on. i just turned 45. midlife? i guess the part that is really driving me crazy is… WHAT THE HELL NEXT???

dreams come true!

landileigh — Fri, 29 Feb 2008 06:42:03 +0000

just last week i wrote in my post “otto cose piccole (8 little things)” : 8 things i want to do before i die: #8. i want to be quoted by someone famous.

i guess i should have said, “i want to be quoted IN SOMETHING FAMOUS” cuz i WAS!!

the picture above shows that a dream of mine has come true, I have been quoted by a famous publication. In today’s Wall Street Journal 02/28/08 – Page D1 http://online.wsj.com/public/page/us_in_todays_paper.html?mod=topnav_2_0433 , in the article entitled ” Google to Offer Health Records on the Web” or you can click directly to the article here: http://online.wsj.com/article/SB120416090319398335.html?mod=todays_us_nonsub_pj

i was found by the author due to a couple of posts i made at Diabetes365! they were screenshots of my labs and my discussion of being able to access my medical records online. alot of the article was the interview that i did with the writer, and i was on cloud 9 all day to see my name in print in such a publication regarding health issues that relates to all of us!

otto cose piccole (8 little things)

landileigh — Wed, 20 Feb 2008 22:06:08 +0000

8 Things I’m Passionate About.
1. Holly
2. Chuck
3. TuDiabetes.com
4. my blog
5. Ariel & Belle
6. my PT cruiser
7. reality TV
8. my friends

8 Things I Want to Do Before I Die.
1. see my daughter graduate
2. see my daughter get married
3. drive the track at Sears Point
4. sky dive even though i’m terrified of heights
5. visit Milan and see my family’s plot
6. talk to my father
7. sing on a record
8. be quoted by someone famous

8 Things I Say Often.
1. french onion
2. GET OUT OF MY HEAD!
3. shit!
4. i got a roof over my head, food in my belly, the rest is gravy.
5. that which does not kill us, makes us stronger.
6. move your *bleeping* car out of my way!
7. i love you, baby girl!
8. I was right, and you were WRONG!

8 Books I’ve Read Recently.
1.

Cheating Destiny: Living With Diabetes, America’s Biggest Epidemic by James S. Hirsch

Know Your Numbers, Outlive Your Diabetes: 5 Essential Health Factors You Can Master to Enjoy a Long and Healthy Life (Marlowe Diabetes Library) by Richard Jackson and Amy Tenderich (AND AUTOGRAPHED BY AMY!)
3.

Heroes: Saving Charlie: A Novel by Aury Wallington
4.

Diabetes Burnout: What To Do When You Can’t Take it Anymore by William H. Polonsky
5. The Doctor’s Pocket Calorie, Fat & Carbohydrate Counter 2004: Plus 170 Fast-Food Chains & Restaurants by Allan Borushek
6.

“My Ox Is Broken!”: Detours, Roadblocks, Fast Forwards and Other Great Moments from TV’s The Amazing Race by Adam-Troy Castro, Billy Gaghan, and Carissa Gaghan 7. A Wrinkle In Time by Madeleine L’Engle

Using Insulin, Everything You Need for Success With Insulin by John Walsh, Ruth Roberts, Timothy Bailey, and Chandra B. Varma 8.

Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin (Marlowe Diabetes Library) by Gary Scheiner and Barry Goldstein

8 Songs I Could Listen to Over and Over.
1. Into the Mystic -Van Morrison
2. Rhiannon – Fleetwood Mac
3. Daughters - John Mayer
4. Fire and Rain - James Taylor
5. Over the Rainbow - Judy Garland
6. Where Have You Been - Kathy Mattea
7. Mandy - Barry Manilow
8. Long Cool Woman in a Black Dress - The Hollies

8 Things That Attract Me to My Best Friends.
1. No Bullshit
2. They love me for me
3. They listen, and listen and listen
4. They make me laugh and giggle until i snort.
5. They don’t give a crap if i do or don’t have money.
6. They love my car.
7. They know that the love i have for my daughter surpasses all.
8. They know i never want a pity party.

google me? google you!

landileigh — Mon, 18 Feb 2008 05:28:58 +0000

i had an two interesting experiences this week. the first, i had an old friend (i guess that’s the best word) contact me through an IM. beyond being surprised, i was inquisitive as to HOW this person found me again. they had GOOGLED me! the second, a co-worker told me she found my blog interesting, and discovered many different things about me that she hadn’t realized. one was she thought i was a better writer than i show myself to be.

actually i’m probably one of the easiest people in the world to find. noone else has my first name. i googled myself and found i had 17 pages on me! and they weren’t just garbage pages, but REAL pages! so of course i had to click on my own links to see if there was anything that the private detectives of this world could discover on me. LOL! nope, boring as ever! i just can’t shut my trap and have to post, post, post, and blog, blog, blog!

so this got me to thinking… if an old friend and a workmate could find me… why can’t my very own father? he and my mother were never married, i’m definitely over 18. my mother passed away 10 years ago… nothing stopping him.

oh, btw, if any old boyfriends read this, i’m still skinny, and young. those other pictures that you think you see on this blog are figments of your imagination.

i hate being late

landileigh — Fri, 15 Feb 2008 06:11:09 +0000

another morning of being late. i’m not a late person at all. i’m the one who shows up 10 minutes early.i live with two permanently late people. my mother was a late person. i used to tell her to be some place at 6:30 if i wanted her there at 7:00. i mean how long does it take someone to get dressed and get out the door? well, for my daughter. an hour and a half is just not enough time.

the big part of this is i cannot, for the life of me, get that child (17 years, 10 months, 14 days old) to get her butt out of bed. i start at 6:45 in the morning, that’s when my alarm goes off. i’m usually up on my own at 6:00am. then i go turn her light on, and set her alarm for 7:00. (i think she’s forgotten how to move the little switch to the right, figures it only works to the left). then her alarm goes off, it still is under the covers and back to sleep. then the morning yelling starts. “GET OUT OF BED!”, i scream. and she yells back, “I AM!” every single damn morning we do this. nothing works. i’ve done ice, water, throwing a cat on her. till i finally get her up at the last possible minute. i’m thinking of changing all the clocks in the house to get her to think she’s up later than she is.

the husband is just as bad. he has one speed, slow. the tortise has nothing on this man. he just plods along. plod, plod, plod.

my bosses are also permanently late people.

i’m beginning to think i’m on the wrong planet.

Bad News and Good News - 02/04/08

landileigh — Sun, 10 Feb 2008 18:45:44 +0000

i had my blood work done yesterday for my two-months recheck with endo. this time, only 2 tubes.bad news first:

my GFR (glomerular filtration rate) was 31. in July when i was diagnosed it was 35, then 33 in late november, and now 31. I am two points away from Stage 4 CKD (Chronic Kidney Disease). I don’t know how to stop that number from dropping so fast.From the National Kidney Foundation:1) Why glomerular filtration rate (GFR) as a measurement of kidney function?

GFR is usually accepted as the best overall index of kidney function in health and disease. Normal GFR varies according to age, sex, and body size; in young adults it is approximately 120-130ml/min/1.73 m2 and declines with age. A decrease in GFR precedes the onset of kidney failure; therefore a persistently reduced GFR is a specific indication of CKD. Below 60 ml/min/1.73 m2, the prevalence of complications of CKD increases, as does the risk of cardiovascular disease.

Table 3: Stages of chronic kidney disease and clinical action plans
Stage	Description	GFR	Clinical Action Plan
1	Kidney damage with normal or increase GFR	≥90	Diagnosis and treatment, slow progression, CVD risk reduction
2	Kidney damage with mild decrease GFR	60-89	Estimating progression
3	Moderate decrease GFR	30-59	Evaluating and treating complications
4	Severe increase GFR	15-29	Preperation for kidney replacement therapy
5	Kidney Failure	<15	Kidney replacement therapy (if uremia present and patient desirable)

National Kidney Foundation. KDOQI Clinical Practice Guidelines for Chronic Kidney Disease: Evaluation, Classification and Stratificationnow for the good news:
my A1C was 6.1! basically staying the same, even with the change from NovolinN/NovolinR to Lantus/Novolog.

d365 - day 89 - 02/02/08 - SF ADA Expo

landileigh — Sun, 10 Feb 2008 18:29:18 +0000

me and Amy Tenderich at the DiabetesMine booth at the 2008 San Francisco ADA Expo! she is a very kind and sweet lady who signed my copy of her book.

this panel was at the 2008 San Francisco ADA Expo! Moderated by Kelly Close of DiaTRIBE and it had Amy Tenderich of DiabetesMine and others, including Scott King of Diabetes Health.

me and Rickina at the Stick Me Designs booth at the 2008 San Francisco ADA Expo! i bought a lovely green diabetes supply bag from her and just love it!

Me and Manny Hernandez of TuDiabetes.com! we both manned a booth at the 2008 San Francisco ADA Expo! It was great meeting tons of people and introducing them to the Diabetes Online Community! He is very sweet, funny, and passionate about where the Diabetes Communities are headed!

AND NOW HE IS MY REAL LIFE FRIEND not just on a puter!

Manny and I had many conversations from this friendship, which turned into: THIS AMAZING OPPORTUNITY!!

the ADA vs. JDRF (putting “my type” into their definition box)

landileigh — Thu, 31 Jan 2008 07:26:35 +0000

According to the ADA (and my doctor), Type 1 diabetes is classified as such: In type 1 diabetes, the body does not produce insulin.

the JDRF though classifies it as such: Type 1 diabetes is an autoimmune disease that results in the permanent destruction of insulin producing beta cells of the pancreas.

according to the JDRF, even though i have permanent destruction of insulin producing beta cells of my pancreas, and i no longer produce insulin, i am not type 1 because my diabetes was not caused by an autoimmune disease. i guess my stanford graduate of medicine endocrinologist doesn’t know anything either with his diagnosis of type 1. my c-peptide is non-existent, but that’s still not good enough.

i’m beginning to feel very second class and bullied because of that damn word “autoimmune”. i feel like i’m in high school again with this way of thinking. “oh don’t talk to her, she’s not autoimmune” “she’s not one of us!”, adults get type 1 too, not just children.

my diabetes will never be cured. whether a cure is found or not. the only hope for me is when my kidneys finally give out i have a pancreas transplant along with my kidneys.

but even then the JDRF won’t consider me good enough to be “one of them”.

diabetes 365 - days 83 & 84 - 01/27/08

landileigh — Tue, 29 Jan 2008 07:13:51 +0000

sussy arrived! and ariel wants desperately to know WHAT is in this box that is jut her size?!

i got an AMAZING array of SUSSY from Molly and Dixie! i love EVERYTHING!

it was SUSSYLICIOUS!

THANK YOU from the bottom of my heart Molly and Dixie!